Knowing all the disease management options available, particularly in light of the evolving MS landscape, enables you to feel sure you are managing your condition in the way that's best for you. Research has found that one in 10 people living with MS
had seen neither an
MS-specialist nurse nor neurologist in the past year, as recommended by the National Institute for Health and Care Excellence (NICE).1
When was the last time you spoke to an MS-specialist service about how best to manage your condition?
Ultimately, we want to empower those of you not currently taking advantage of the support available to take positive action to re-engage.
97% of MS nurses and neurologists believe there are people who could benefit from reconsidering how they manage their disease in light of how the MS landscape has evolved.2
1 GEMSS Patient Survey Meta-Analysis. MS Trust. November 2015. Available at: support.mstrust.org.uk/file/Evidence-for-MS-Specialist-Services.pdf. Last accessed: April 2018.
2 Multiple Sclerosis Clinician Survey of 100 Specialist MS Nurses and Neurologists by Opinion Health in July 2015.
I've got one message for people living with MS - Take Control, Know Your Choices.
Whether you were diagnosed 10 years ago or 10 weeks ago, it's essential that you visit a member of your local MS-specialist team at least once a year.
Regular contact with MS-specialist services may help you take better control of your condition. As well as being monitored, you'll receive the latest facts and information about the effective management of your condition, and that means you can make informed decisions about what's right for you.
MS is a subject close to my heart; my Uncle Volker lived with it for over 25 years, and since then, so much about how we can manage the condition has changed. Inspired by him, I want to stress that MS is not a static disease, so it's important to be as proactive as possible when managing it. Dr Christian Jessen
I'm supporting the 1MSg campaign because I believe that there are people out there with MS who are not seeing an MS doctor or MS nurse regularly, who would benefit if they did. We know that some of them have been engaged with services in the past and stopped being engaged for various reasons, but we think we have new things to offer now compared to the past. Dr Martin Duddy, Consultant Neurologist
One of the difficulties for many of our patients is that they often get lost to follow-up. Sometimes that's because patients are uncomfortable going for their yearly check, or they forget, or they're not sure whether they need to go or not. Sometimes, people just slip through the system, because systems do fail. So the whole point of the 1MSg campaign is to actually get people back engaged with healthcare professionals who are working with their MS. Dr Anita Rose, Consultant Clinical Neuropsychologist
The tag line of the 1MSg campaign is 'Take Control, Know Your Choices'. The reason for choosing this is to give people a bit of encouragement so that they can take control of their own MS. The disease is one where people very often do feel out of control, relapses can be unpredictable, but people, I think, have suffered in silence. Dr Martin Duddy, Consultant Neurologist
Without knowing what's out there, what your choices are, you will consistently feel out of control and you won't feel empowered. But if you find what's out there, you know what your choices are, you are then in control of your MS. You are empowered to take control and to work with your MS and not against it. Dr Anita Rose, Consultant Clinical Neuropsychologist